BLACKSWAN FOUNDATION - FOR RESEARCH ON ORPHAN DISEASES

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Company Overview

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Swiss UID, VAT number:
CHE-115.597.004
Calendar
Date of incorporation:
4/15/2010
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Location:
Porza
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Office:
Porza
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Legal Form:
foundation

Management

Male

Stefano Berti

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Bern

Member of the foundation board

Joint signing authority (any two to sign)

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Female

Chiara Ciriminna

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Lausanne

Member of the foundation board

Joint signing authority (any two to sign)

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Male

Skander Najar

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Meyrin

Member of the foundation board

Joint signing authority (any two to sign)

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Female

Karima Soudani-Kamal

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Féchy

Member of the foundation board

Joint signing authority (any two to sign)

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Male

Olivier Menzel

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Vuarrens

Chairperson of the foundation board

Joint signing authority (any two to sign)

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Male

Massimo Riccardi

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Montagnola

Member of the foundation board

Joint signing authority (any two to sign)

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Male

Davide Städler

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Lausanne

Member of the foundation board

Joint signing authority (any two to sign)

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SOGC Notifications
No.Journal No.Journal dateSOGCSOGC datePage / ID
1381827.03.20256301.04.20251006297282
21371829.10.202421301.11.20241006168891
3921414.07.202213819.07.20221005524294
42326007.10.202119812.10.20211005310710
5352602.03.20214505.03.20211005116908
61278706.10.202019709.10.20201004996909
7798125.06.201012501.07.201024/5703982
8454015.04.20107621.04.201014/5597018

Company Purpose

Sostenere la ricerca terapeutica per le malattie rare o orfane a causa della mancanza di sostegni finanziari sovente riscontrata dai laboratori di ricerca pubblica sulle malattie rare o orfane. Raccogliere fondi per sostenere la ricerca scientifica relativa al settore delle malattie rare o orfane. Finanziare la ricerca pre-clinica e clinica di malattie rare o orfane, con l'assegnazione di fondi alle richieste di laboratori di ricerca. Raccogliere fondi per sostenere la ricerca scientifica di una malattia rara specifica (ad esempio malattie metaboliche del fegato). Promuovere e finanziare l'applicazione terapeutica di nuovi protocolli scientifici al fine di trovare una cura alle malattie rare o orfane incurabili. Informare e educare il pubblico sulla problematica della malattie rare o orfane.